Pediatric Palliative Oncology Symposium 2018

Preconference: Integration of Psychosocial Standards into Pediatric Palliative Oncology Care
8:30AM - 12:00PM
Valerie M. Crabtree, PhD
Barbara L Jones, PhD, MSW, FNAP
Stacy S Remke, MSW, LICSW, ACHP-SW
Lori Wiener, PhD, DCSW, LCSW-C
Marlo Thomas Center Auditorium

Objectives:
After this session, participants will be able to explain the benefits of establishing psychosocial standards in their pediatric oncology palliative care programs and implement strategies to develop appropriate standards for their pediatric oncology program.

Preconference: Integration of Bereaved Parents into Education and Parent-to-Parent Support Programs: Methods to Develop new Programs or Refine Existing Programs
1:00PM - 4:30PM
Justin Baker, MD
Brittany Barnett, MS, NCC, CAVS
Lisa Clark, PhD
Jennifer Snaman, MD
Karen Williams, NP
Amanda L Linz, MD
Marlo Thomas Center Auditorium

This session will also include a panel of bereaved parents from St. Jude. 

Objectives:

After this session, participants will be able to explain and implement strategies to incorporate bereaved parents into education and support programs in their pediatric palliative care programs.

Hippocratic: 18 Experiments in Gently Shaking the World
6:30PM - 8:00PM
Marlo Thomas Center Auditorium

Dr. MR Rajagopal, acclaimed Indian physician, will screen his film “Hippocratic: 18 Experiments in Gently Shaking the World.” This film tells the story of how he broke through barriers in India to make progress in providing end of life care to the vulnerable in India.

Registration/Breakfast
7:00AM - 7:45AM
Marlo Thomas Center Atrium

Opening Remarks
7:45AM - 8:00AM
Justin Baker, MD
James Downing, MD
Marlo Thomas Center Auditorium

From Palliative to Curative to Integrative Care of Children with Cancer: An Historical Perspective
8:00AM - 9:00AM
Joanne Wolfe, MD, MPH
Marlo Thomas Center Auditorium

Are We Over or Under Prescribing? Opioids in in Children with Severe Pain: Separating Truth from Fiction
9:00AM - 10:00AM
Stefan Friedrichsdorf, MD
Marlo Thomas Center Auditorium

Break
10:00AM - 10:15AM
Marlo Thomas Center Atrium

Workshop Session A: Difficult Conversations: A Bereaved Parent Led Workshop
10:15AM - 11:45AM
Erica C Kaye, MD
Lindsay J Blazin, MD
Marlo Thomas Center Board Room

Difficult conversations require learned communication skills. In this session, participants will have the unique opportunity to practice communication skills through small group role-play experiential learning utilizing bereaved parents to provide constructive feedback.

Workshop Session A: End of Life Symptom Management, MD Track
10:15AM - 11:45AM
Deena R Levine, MD
Liza Johnson, MD
Marlo Thomas Center Meeting Room 3

This workshop is intended for physicians and advanced practice providers who are treating/prescribing medications for difficult to control symptoms at the end of life. content includes understanding prescribing, rotating and escalating opioids, when benzodiazepines might be best, opioid alternatives, etc. NOTE: this session is now full.

Workshop Session A: End of Life Symptom Management, RN/Allied Health Track
10:15AM - 11:45AM
Kathy Perko, MS, PNP
Angela Snyder, DNP
Marlo Thomas Center Meeting Room 2

This workshop is designed to educate the RN providing end of life care to patients, understanding what medications to expect to administer, what symptoms are addressed and what to expect in patient care needs. NOTE: this session is now full.

Workshop Session A: Integrative Medicine-Exploring Healing Power through the Practice of Acupuncture and Reiki
10:15AM - 11:45AM
Holly L Spraker-Perlman, MD
Helen Ly, MD
Amy C Ly, MD
Marlo Thomas Center Auditorium

See real-life demonstrations of integrative techniques that can help with symptom management in our population. We explore the concept of incorporation of integrative medicine in very traditional medical settings, from credentialing challenges, to identifying the appropriate professionals.

Workshop Session A: Take Time to Smell the Lavender
10:15AM - 11:45AM
Melody Cunningham, MD, FAAHPM
Brenda Wiseman, RN
Marlo Thomas Center Meeting Room 5

A workshop designed to inform attendees of the importance of self care to prevent compassion fatigue and burnout. Learn specific techniques to not only survive our work, but to thrive in our work.

Workshop Session A: The Language of Illness: The Art of Telling, Listening, and Self-Care through Narrative Medicine
10:15AM - 11:45AM
Melissa Mark, MD
Meaghann Weaver, MD
Marlo Thomas Center Lecture Hall

This dynamic, interactive session highlights the role of reflection, story, and narrative in gathering new understanding, making meaning, team building, and honoring the legacy of patients and families. 

St. Jude Grand Rounds: Living a Stress Free Life
12:00PM - 1:00PM
Amit Sood, MD
Marlo Thomas Center Auditorium

Note: Dr. Sood was unable to present. 

Presented by Dr. Amit Sood, physician with Mayo Clinic. Dr. Sood is passionate about wellbeing, and our responsibility to live as stress free a life as possible. In his book "A Guide to Stress Free Living" Dr. Sood discusses how recent neurologic research demonstrates the brain's way of operating and how it can produce unwanted stress. He will teach skills currently taught at May Clinic to reduce unwanted stress, increasing our ability to practice gratitude, compassion and acceptance, positively influencing our work, our personal relationships and or lives

Lunch
1:00PM - 1:45PM
Marlo Thomas Center Atrium

Bereaved Parent Panel Q&A
1:45PM - 3:00PM
Marlo Thomas Center Auditorium

We will host a bereaved parent panel to answer questions about the value of incorporating bereaved parents in an advisory capacity at your institution.

Pet Therapy
3:00PM - 3:15PM
Marlo Thomas Center Auditorium

Break/Transition to Workshops
3:15PM - 3:30PM
Marlo Thomas Center Atrium

St. Jude Campus Tours
3:30PM - 5:30PM
Marlo Thomas Center Atrium

Workshop Session B: Difficult Conversations: A Bereaved Parent Led Workshop
3:30PM - 5:30PM
Erica C Kaye, MD
Lindsay J Blazin, MD
Marlo Thomas Center Board Room

Difficult conversations require learned communication skills. In this session, participants will have the unique opportunity to practice communication skills through small group role-play experiential learning utilizing bereaved parents to provide constructive feedback.

Workshop Session B: End of Life Symptom Management, MD Track
3:30PM - 5:30PM
Deena R Levine, MD
Liza Johnson, MD
Marlo Thomas Center Meeting Room 2

This workshop is intended for physicians and advanced practice providers who are treating/prescribing medications for difficult to control symptoms at the end of life. content includes understanding prescribing, rotating and escalating opioids, when benzodiazepines might be best, opioid alternatives, etc. NOTE: this session is now full.

Workshop Session B: End-of-Life Symptom Management (RN/Allied Health Track)
3:30PM - 5:30PM
Kathy Perko, MS, PNP
Angela Snyder, DNP
Marlo Thomas Center Lecture Hall

This workshop is designed to educate the RN providing end of life care to patients, understanding what medications to expect to administer, what symptoms are addressed and what to expect in patient care needs.

Workshop Session B: Take Time to Smell the Lavender
3:30PM - 5:30PM
Melody Cunningham, MD, FAAHPM
Brenda Wiseman, RN
Marlo Thomas Center Meeting Room 5

A workshop designed to inform attendees of the importance of self care to prevent compassion fatigue and burnout. Learn specific techniques to not only survive our work, but to thrive in our work. NOTE: this session is now full.

Workshop Session B: The Language of Illness: The Art of Telling, Listening, and Self-Care through Narrative Medicine Narrative Medicine
3:30PM - 5:30PM
Melissa Mark, MD
Meaghann Weaver, MD
Marlo Thomas Center Meeting Room 3

This dynamic, interactive session highlights the role of reflection, story, and narrative in gathering new understanding, making meaning, team building, and honoring the legacy of patients and families.

Book signing with Amit Sood, MD
6:00PM - 7:00PM
Marlo Thomas Center Atrium

Breakfast
7:00AM - 7:45AM
Marlo Thomas Center Atrium

Welcome and Announcements
7:45AM - 8:00AM
Marlo Thomas Center Auditorium

Standards for Psychosocial Care for Children with Cancer and their Families: Past, Present, and Future Directions
8:00AM - 9:00AM
Lori Wiener, PhD, DCSW, LCSW-C
Anne E Kazak, PhD, ABPP
Marlo Thomas Center Auditorium

Break
9:00AM - 9:15AM
Marlo Thomas Center Atrium

Beyond The Right Thing To Do: No Money, No Mission!
9:15AM - 10:15AM
Sarah Friebert, MD
Marlo Thomas Center Auditorium

A powerhouse of information in Rick Shadyac of ALSAC, the fund raising portion of St. Jude, and Sara Friebert of the Haslinger Foundation in Akron OH. They will share with us successes and failures in the current philanthropic world.

Workshop Session C: Development of a Palliative Care Program: Home Based, Clinic Based
10:30AM - 12:15PM
Justin Baker, MD
Katharine E Brock, MD, MS
Marlo Thomas Center Lecture Hall

This workshop provides a brief overview on the necessary steps to think through as you plan to build or refine a palliative care program in the home based setting as well as a clinic based setting. Hear our successes and our failures, and what we have learned. NOTE: this session is now full.

Workshop Session C: Difficult Conversations: A Bereaved Parent Led Workshop
10:30AM - 12:15PM
Erica C Kaye, MD
Lindsay J Blazin, MD
Marlo Thomas Center Board Room

Difficult conversations require learned communication skills. In this session, participants will have the unique opportunity to practice communication skills through small group role-play experiential learning utilizing bereaved parents to provide constructive feedback.

Workshop Session C: Ethics and Palliative Care
10:30AM - 12:15PM
Deena R Levine, MD
Liza Johnson, MD
Marlo Thomas Center Meeting Room 1

Navigating medical decision making in the setting of a medically complex child is complicated and often very challenging. Many ethical dilemmas arise, and appropriately addressing concerns with medical staff as well as with families is difficult. Hear from experts in Biomedical Ethics how to navigate these discussions, what resources are out there, and when to call for help! NOTE: this session is now full.

Workshop Session C: Integrative Medicine-Exploring Healing Power through the Practice of Acupuncture and Reiki
10:30AM - 12:15PM
Holly L Spraker-Perlman, MD
Helen Ly, MD
Amy C Ly, MD
Marlo Thomas Center Meeting Room 3

See real-life demonstrations of integrative techniques that can help with symptom management in our population. We explore the concept of incorporation of integrative medicine in very traditional medical settings, from credentialing challenges, to identifying the appropriate professionals. NOTE: this session is now full.

Workshop Session C: Professional Boundaries (RN/Allied health track)
10:30AM - 12:15PM
Kathy Perko, MS, PNP
Emily Rutt, NP
Marlo Thomas Center Meeting Room 2

Maintaining professional boundaries in caring for the terminally ill child is difficult, but necessary. Knowing what boundaries are, seeing when we ignore boundaries, and knowing how to avoid this protects our patients and families. 

Workshop Session C: Take Time to Smell the Lavender
10:30AM - 12:15PM
Melody Cunningham, MD, FAAHPM
Brenda Wiseman, RN
Marlo Thomas Center Meeting Room 5

A workshop designed to inform attendees of the importance of self care to prevent compassion fatigue and burnout. Learn specific techniques to not only survive our work, but to thrive in our work. NOTE: this session is now full.

Lunch
12:15PM - 1:15PM
Marlo Thomas Center Atrium

Workshop Session D: Difficult Conversations: A Bereaved Parent Led Workshop
1:15PM - 3:00PM
Erica C Kaye, MD
Lindsay J Blazin, MD
Marlo Thomas Center Board Room

Difficult conversations require learned communication skills. In this session, participants will have the unique opportunity to practice communication skills through small group role-play experiential learning utilizing bereaved parents to provide constructive feedback.

Workshop Session D: End-of-Life Symptom Management (RN/Allied health track)
1:15PM - 3:00PM
Kathy Perko, MS, PNP
Angela Snyder, DNP
Marlo Thomas Center Meeting Room 2

This workshop is designed to educate the RN providing end of life care to patients, understanding what medications to expect to administer, what symptoms are addressed and what to expect in patient care needs. NOTE: this session is now full.

Workshop Session D: Ethics and Palliative Care
1:15PM - 3:00PM
Deena R Levine, MD
Liza Johnson, MD
Marlo Thomas Center Meeting Room 3

Navigating medical decision making in the setting of a medically complex child is complicated and often very challenging. Many ethical dilemmas arise, and appropriately addressing concerns with medical staff as well as with families is difficult. Hear from experts in Biomedical Ethics how to navigate these discussions, what resources are out there, and when to call for help! NOTE: this session is now full.

Workshop Session D: Integrative Medicine-Exploring Healing Power through the Practice of Acupuncture and Reiki
1:15PM - 3:00PM
Holly L Spraker-Perlman, MD
Helen Ly, MD
Amy C Ly, MD
Marlo Thomas Center Lecture Hall

See real-life demonstrations of integrative techniques that can help with symptom management in our population. We explore the concept of incorporation of integrative medicine in very traditional medical settings, from credentialing challenges, to identifying the appropriate professionals. NOTE: this session is now full.

Workshop Session D: Take Time to Smell the Lavender
1:15PM - 3:00PM
Melody Cunningham, MD, FAAHPM
Brenda Wiseman, RN
Marlo Thomas Center Meeting Room 5

A workshop designed to inform attendees of the importance of self care to prevent compassion fatigue and burnout. Learn specific techniques to not only survive our work, but to thrive in our work. Note: this session is now full. 

Being a Good Parent to my Seriously Ill Child
3:00PM - 4:00PM
Pam Hinds, RN, PhD, FAAN
Marlo Thomas Center Auditorium

Closing Remarks
4:00PM - 4:15PM
Justin Baker, MD
Marlo Thomas Center Auditorium

Afternoon break
4:15PM - 4:30PM
Marlo Thomas Center Atrium